Today, September 7th, is World Duchenne Awareness Day! Since 2020, The France Foundation (TFF) has provided education to the multidisciplinary health care team on this rare genetic disorder, advocating for improved care coordination for patients and their families. Parent Project Muscular Dystrophy (PPMD) recognizes the whole month of September as Duchenne Action Month, so we’re taking the opportunity to reflect on how far we’ve come and how far we have yet to go together.

TFF has a long history of expertise in rare diseases and neuromuscular genetic disorders. Treating DMD effectively requires a team of observant and informed health care providers to take decisive action when caring for patients, so building quality content around identification, diagnosis, and treatment options was-and still is-critical for the continued improvement of patient outcomes.

What began as grand rounds and conference coverage has evolved into webinars and interactive modules designed not only for neurology and neuromuscular specialists, but also for pediatricians and primary care professionals as well. Resource libraries and microlearning opportunities were also constructed to increase awareness of this debilitating disorder, all while we continued building partnerships with experts in the field and innovative advocacy groups like PPMD.

Providers who understand even the fundamentals of DMD have the capacity to change the course of a patient’s life for the better, and that alone makes every moment we put into our activities rewarding.

In our efforts to make identifying and treating this rare disorder faster and more accessible to all patients who need it, TFF is committed to continually bringing education on DMD forward into 2025 and beyond. Through practical and thoughtful insights, we are determined to align our education with evolving treatments and ongoing patient needs alongside our partners and faculty.

Thank you for joining us on this journey. Whether you’re a learner who has been here for a few moments or a supporter of many years, we’re thrilled to work with you to help health care providers tackle this rare disorder across the world. Remember, this September, if there’s ever a thought that a patient has DMD, don’t delay-order a CK!

If you’re interested in checking out our DMD education, click here to visit our focused library.

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If you’d like to know how you can partner with The France Foundation to build education in a specific disease area, get in touch with us using the form below.