DELAYS IN DIAGNOSING DMD ARE DEVASTATING
Don’t Delay, Check a CK!
Early recognition of DMD is critical for patients who might qualify for gene therapy. If they’re diagnosed too late, they age out of the approved indications.
Assessing Motor Function Animation
Discover ways to screen young patients with suspected motor function delay for DMD.
Pediatrician's Role in Managing Patients With DMD
Pediatrician, Dr. Josh Lyon, and pediatric neurologist, Dr. Aravindhan Veerapandiyan, describe the ongoing role of pediatricians in managing patients with DMD.
Pediatrician's Role in Managing Patients with DMD
Discover ways to screen young patients with suspected motor function delay for DMD.
Ongoing Role of a Pediatrician in DMD Management
Immerse yourself in an interactive case with a neurologist walking you through screening, diagnosis, and the ongoing role of a pediatrician in DMD management.
Information & Resources for Families
Ongoing Role of a Pediatrician in DMD Management
Discover ways to screen young patients with suspected motor function delay for DMD.
Information & Resources for Families
Immerse yourself in an interactive case with a neurologist walking you through screening, diagnosis, and the ongoing role of a pediatrician in DMD management.
Additional Resources
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For additional resources for patients and families, visit the Parent Project Muscular Dystrophy's (PPMD) website: https://childmuscleweakness.org/
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CDC Childhood Milestone Tracker App: www.cdc.gov/ncbddd/actearly/milestones-app.html
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From the National Task Force for the Early Identification of Childhood Neuromuscular Disorders: https://childmuscleweakness.org
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Videos of Characteristic Motor Delays in DMD: http://childmuscleweakness.org/video-library
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From the NIH: Duchenne Muscular Dystrophy-About the Disease-Genetic and Rare Diseases Information Center https://rarediseases.info.nih.gov/diseases/6291/duchenne-muscular-dystrophy
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From Muscular Dystrophy Association: www.mda.org/disease/duchenne-muscular-dystrophy
- From Sarepta: www.duchenne.com/understanding-duchenne/about-duchenne
- “10 Questions to Ask Your Pediatrician” pdf from Sarepta Website: www.duchenne.com/sites/default/files/2022-02/Doctor_Discussion_Guide.pdf
