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Navigating a Changing
Landscape Together:

Gene Therapy for Hemophilia
December 9, 2022, 11:00 AM
Convention Center Rooms 393-396, New Orleans, LA

Navigating a Changing
Landscape Together:

Gene Therapy for Hemophilia
December 9, 2022, 11:00 AM
Convention Center Rooms 393-396, New Orleans, LA

Thank you for Participating!

Complete the CME/CE Evaluation to Earn Credit!

Recorded Session

This meeting was recorded at the 2022 ASH Annual Meeting.

When complete, please complete the evaluation for CME credit:

Event Information

Although patient and clinician goals for gene therapy for hemophilia may be similar, their experiences are vastly different. This Friday Satellite Symposium, preceding the 64th ASH Annual Meeting and Exposition, focuses on strategies to engage the multidisciplinary care team and patients through a shared decision-making process regarding gene therapy for hemophilia. Dr. Michael Recht and Dr. Guy Young will lead the audience through recent clinical trial updates and how to effectively communicate the latest data to patients.

You will also hear from Luke Pembroke, a patient who has undergone gene therapy for hemophilia, about his experience, questions, and best practices. Jennifer Maahs, NP, will guide you through a case study that provides tools to share with your team and patients. Through role-playing and real patient experiences, this engaging symposium will improve your ability to support patients and families as they consider clinical trials or gene therapy as a future therapeutic option.  

Agenda

11:00 AM    Doors open and lunch provided

11:15 AM    Introduction to Gene Therapy for Hemophilia

11:25 AM    Our Shared Goal, Our Differing Experiences

11:35 AM    Gene Therapy for Hemophilia: Here and Now

11:50 AM    Contemplating Gene Therapy

12:20 PM    Supporting the Patient Through Gene Therapy

12:45 PM    Summary of Key Points

1:00 PM      Q&A

1:15 PM      Adjourn

Event Information

Although patient and clinician goals for gene therapy for hemophilia may be similar, their experiences are vastly different. This Friday Satellite Symposium, preceding the 64th ASH Annual Meeting and Exposition, focuses on strategies to engage the multidisciplinary care team and patients through a shared decision-making process regarding gene therapy for hemophilia. Dr. Michael Recht and Dr. Guy Young will lead the audience through recent clinical trial updates and how to effectively communicate the latest data to patients.

You will also hear from Luke Pembroke, a patient who has undergone gene therapy for hemophilia, about his experience, questions, and best practices. Jennifer Maahs, NP, will guide you through a case study that provides tools to share with your team and patients. Through role-playing and real patient experiences, this engaging symposium will improve your ability to support patients and families as they consider clinical trials or gene therapy as a future therapeutic option.  

Agenda

11:00 AM    Doors open and lunch provided

11:15 AM     Welcome and Introductions
Dr. Michael Recht

11:20 AM     Our Shared Goal, Our Differing Experiences
Dr. Michael Recht & Luke Pembroke

11:30 AM     Gene Therapy for Hemophilia: Here and Now
Dr. Guy Young & Jennifer Maahs, NP

11:50 AM     Contemplating Gene Therapy
Luke Pembroke & Jennifer Maahs, NP

12:15 PM     Supporting the Patient Through Gene Therapy
Dr. Guy Young & Dr. Michael Recht

12:35 PM     Summary of Key Points
Dr. Guy Young, Dr. Michael Recht, Jennifer Maahs, NP, & Luke Pembroke

12:45 PM     Q&A

Faculty Presenters

Jennifer Maahs, NP

Nurse Practitioner
Indiana Hemophilia & Thrombosis Center, Inc.

Fishers, Indiana

Michael Recht, MD, PhD, MBA
Professor of Clinical Pediatrics, Department of Pediatrics
Section of Hematology/Oncology, Clinical Track
Yale School of Medicine
New Haven, Connecticut
Luke Pembroke

Creative Director
Haemnet
London, UK

Guy Young, MD
Director, Hemostasis & Thrombosis Center, Children’s Hospital
Professor of Pediatrics (Clinical Scholar) University of Southern California,
California School of Medicine
Los Angeles, California

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