Navigating a Changing
Landscape Together:
Convention Center Rooms 393-396, New Orleans, LA
Navigating a Changing
Landscape Together:
Convention Center Rooms 393-396, New Orleans, LA
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Recorded Session
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Event Information
Although patient and clinician goals for gene therapy for hemophilia may be similar, their experiences are vastly different. This Friday Satellite Symposium, preceding the 64th ASH Annual Meeting and Exposition, focuses on strategies to engage the multidisciplinary care team and patients through a shared decision-making process regarding gene therapy for hemophilia. Dr. Michael Recht and Dr. Guy Young will lead the audience through recent clinical trial updates and how to effectively communicate the latest data to patients.
You will also hear from Luke Pembroke, a patient who has undergone gene therapy for hemophilia, about his experience, questions, and best practices. Jennifer Maahs, NP, will guide you through a case study that provides tools to share with your team and patients. Through role-playing and real patient experiences, this engaging symposium will improve your ability to support patients and families as they consider clinical trials or gene therapy as a future therapeutic option.
11:00 AM Doors open and lunch provided
11:15 AM Introduction to Gene Therapy for Hemophilia
11:25 AM Our Shared Goal, Our Differing Experiences
11:35 AM Gene Therapy for Hemophilia: Here and Now
11:50 AM Contemplating Gene Therapy
12:20 PM Supporting the Patient Through Gene Therapy
12:45 PM Summary of Key Points
1:00 PM Q&A
1:15 PM Adjourn
Event Information
Although patient and clinician goals for gene therapy for hemophilia may be similar, their experiences are vastly different. This Friday Satellite Symposium, preceding the 64th ASH Annual Meeting and Exposition, focuses on strategies to engage the multidisciplinary care team and patients through a shared decision-making process regarding gene therapy for hemophilia. Dr. Michael Recht and Dr. Guy Young will lead the audience through recent clinical trial updates and how to effectively communicate the latest data to patients.
You will also hear from Luke Pembroke, a patient who has undergone gene therapy for hemophilia, about his experience, questions, and best practices. Jennifer Maahs, NP, will guide you through a case study that provides tools to share with your team and patients. Through role-playing and real patient experiences, this engaging symposium will improve your ability to support patients and families as they consider clinical trials or gene therapy as a future therapeutic option.
11:00 AM Doors open and lunch provided
11:15 AM Welcome and Introductions
Dr. Michael Recht
11:20 AM Our Shared Goal, Our Differing Experiences
Dr. Michael Recht & Luke Pembroke
11:30 AM Gene Therapy for Hemophilia: Here and Now
Dr. Guy Young & Jennifer Maahs, NP
11:50 AM Contemplating Gene Therapy
Luke Pembroke & Jennifer Maahs, NP
12:15 PM Supporting the Patient Through Gene Therapy
Dr. Guy Young & Dr. Michael Recht
12:35 PM Summary of Key Points
Dr. Guy Young, Dr. Michael Recht, Jennifer Maahs, NP, & Luke Pembroke
12:45 PM Q&A
Faculty Presenters
Jennifer Maahs, NP
Nurse Practitioner
Indiana Hemophilia & Thrombosis Center, Inc.
Fishers, Indiana
Michael Recht, MD, PhD, MBA
Section of Hematology/Oncology, Clinical Track
Yale School of Medicine
New Haven, Connecticut
Luke Pembroke
Creative Director
Haemnet
London, UK
Guy Young, MD
Professor of Pediatrics (Clinical Scholar) University of Southern California,
California School of Medicine
Los Angeles, California